Resources

Paroxysmal nocturnal hemoglobinuria (PNH), a rare acquired hematologic disorder, can be treated with C5 inhibitors (C5i) such as eculizumab or ravulizumab.

COVID-19 caused or exacerbated negative health outcomes for many people, especially for those with pre-existing comorbidities. Sickle cell disease (SCD) is a rare genetic condition that primarily occurs among African Americans in the United States.

The MetroHealth System, Cuyahoga County’s public health system, provides care to more than 300,000 patients through nearly 1.5 million visits a year at its four hospitals, and more than 20 health centers throughout the county, which includes Cleveland and surrounding suburbs

As the COVID-19 pandemic raged, the healthcare industry was rightfully focused on treating the devastating acute symptoms of the disease.

Penn State College of Medicine is a national leader in pursuing basic, clinical, translational and health services research. Penn State is ranked in the top one percent of the world’s universities, and the College of Medicine boasts a portfolio of nearly $100 million in funded research.

The University of Texas Medical Branch (UTMB) Health’s Blocker Burn Center in Galveston, Texas is nationally and internationally recognized for specialization in the treatment of thermal, chemical and radiation burns.

The West Virginia Clinical and Translational Science Institute (WVCTSI), a partner of West Virginia University (WVU), is an academic home and a catalyst for clinical and translational research that targets priority health areas including addiction and resulting emerging epidemics such as hepatitis C, cancer, cardiovascular disease, and chronic lung disease.

Clinical trials, whether industry, cooperative group sponsored, or investigator initiated, have an unacceptable rate of failure as a result of the inability to recruit sufficient numbers of patients.